For Healthcare Providers
HAE Attack Stories cover image HAE Attack Stories cover image
Hear people living with HAE share their stories.

Still experiencing HAE attacks? You’re not alone

Anyone who has HAE, including those taking prophylaxis, can experience unpredictable, potentially life-threatening, HAE attacks. These attacks force people to make compromises in their everyday lives. We asked real people living with HAE to share their stories.

Hear people living with HAE share their experiences

All
Attacks on Prophylaxis
Attack burden

Why she keeps on-demand
treatment on hand

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Video preview thumbnail of Laurie, a real person living with HAE, sharing her story about keeping on-demand treatment on hand. play

Why she keeps on-demand
treatment on hand

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Video preview thumbnail of Linda, a real person living with HAE, sharing her story about treating in minutes. play

Recognising the onset of an attack and taking on-demand treatment

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Video preview thumbnail of Christina, a real person living with HAE, sharing her story about treating right away play

When an attack progresses and begins to take over

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Video preview thumbnail of Ashley, a real person living with HAE, sharing her story about attack progression play

If only I treated my attack right away

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Video preview thumbnail of Linda’s Dear Future Me Letter play

The importance of treating in minutes, not hours

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Write a Message to Your Future Self

How would you advise your future self to handle the next HAE attack?

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